A guide for people living with advanced lung disease.
Many patients living with end-stage lung disease frequently visit the doctor’s office, emergency room, and hospital due to breathing difficulties, fatigue, and other worsening symptoms. These exacerbations could be prevented or managed with hospice and palliative care.
We are pleased to share this Advanced Lung Care Guide, which includes valuable information to address your questions and concerns and ensure high-quality advanced lung disease care from the safety and comfort of your home.
Who qualifies for the program?
All hospice patients with advanced lung disease. Our providers will work with our nurses to review the medical history of each patient and ensure that this program is offered to patients who meet the advanced lung disease criteria that has been outlined by our collaborating entities. The patient’s nurse will let them know if they are approved for this program and provide all of the information and tools necessary for program initiation.
With our program, you can expect:
- To receive regular visits by a nurse with specialized training in the evaluation of lung disease, to evaluate and manage your lung disease, and to control the symptoms at home. The nurse will follow the direct orders of your physician or care team.
- To receive patient education specifically designed for you and your family. If you have any questions about the contents of this booklet, please ask your care team.
- To be part of a team overseen by our physician who is board certified in Hospice and Palliative Medicine and who works directly with your primary care physician or care team.
- To have medications ordered by your physician or care team to help control symptoms. Your nurse will review your medications with you and order those medications that are essential for your symptom management.
- To receive additional supportive care in the form of visits provided by a social worker, a nurse assistant, a chaplain, a counselor, and/or another member of your care team, as might be helpful to you.
- The management of your lung disease takes a team effort, and YOU are the KEY member of the team. The rest of your team members depend on you to call your care team if you have any concerns.
Make a Referral
Could you or someone you know benefit from hospice care? Anyone can refer a patient. This includes physicians, friends, neighbors, members of the community and even the patients themselves. Don’t wait — many people wish they had started hospice care sooner. Complete this form to find out more about getting the help you or someone you love needs.
